Thank you for your interest in the PASAGE study.

We are researchers studying the possible impact on families and communities of genetic therapies that might become available in the future.

We are inviting people with lived experience of many different genetic conditions to talk with us about their views towards genetic therapies. We know people have very different feelings about potential treatments; no matter how you feel, we are interested in hearing from you.

This study is funded by the National Institutes of Health and is not affiliated with any commercial or pharmaceutical company.

Taking part in the study involves a one-time phone or Zoom interview lasting approximately 30-60 minutes. You will receive a gift card following the interview.

If you are interested in learning more, please fill out the form below. More information about the study is available at www.pasage-study.org.

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