Testicular Cancer Patient Questionnaire

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Our goal is to improve support for testicular cancer patients by understanding better the patient perspective of the medical process after orchiectomy (removal of the testicle) in patients who have stage I disease (no spread to lymph nodes).

Thank you for your input!

If you agree to participate you will be asked to complete an anonymous survey. You will not receive payment for your participation. There are no known risks to you from taking part in this research study. This study will not make your health better. It is for the benefit of research. Your anonymous information collected as a part of this research will not be used or distributed for future research.

Whose input did you consider most important when deciding whether to choose surveillance (periodic imaging and office visits) vs. additional therapy (i.e. chemotherapy, radiation, surgery) after orchiectomy?

Doctor's Counselling

Personal Medical Research

Significant Other's/Family's Opinion

Other

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Please rate your satisfaction with your quality of contact with doctors after orchiectomy (removal of the testicle) (Disappointed = 1 to Exceptional = 5).

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Please rate your satisfaction with your understanding of treatment/management options after orchiectomy (removal of the testicle) (Disappointed = 1 to Exceptional = 5).

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Please rate your satisfaction with the quality of information provided to decide on management after orchiectomy (removal of the testicle) (Disappointed = 1 to Exceptional = 5).

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Please rate your understanding of the risk of cancer recurrence after orchiectomy (removal of the testicle) (Disappointed = 1 to Exceptional = 5).

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Who did you meet with to decide on management after orchiectomy?

Urologist

Radiation Oncologist

Medical Oncologist

Other

Did you feel involved in the treatment decisions for your testicular cancer management?

Yes

Somewhat

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Did you feel you had access to information on testicular cancer prognosis and treatment options?

Yes

Somewhat

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Did you have health concerns regarding the following factors when deciding on surveillance vs. further treatment?
Fertility side effects

Yes

Somewhat

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Did you have health concerns regarding the following factors when deciding on surveillance vs. further treatment?
Sexual side effects

Yes

Somewhat

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Did you have health concerns regarding the following factors when deciding on surveillance vs. further treatment?
Mental health side effects

Yes

Somewhat

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Did you have health concerns regarding the following factors when deciding on surveillance vs. further treatment?
Physical side effects

Yes

Somewhat

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Did you have health concerns regarding the following factors when deciding on surveillance vs. further treatment?
Long term/delayed effects of further treatment

Yes

Somewhat

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What was the biggest factor you considered when choosing surveillance or further treatment after orchiectomy?

Testicular cancer risk

Doctor's opinion

Side effects of further therapy

Other

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If you answered "other" to the last question please share what this factor was.

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What would have made you feel more supported in choosing management after orchiectomy (removal of the testicle)?

More statistical information

More time with a physician

Having the chance to talk with more medical professionals for second opinions

Having information provided on support groups

Other

If you answered "other" to the last question please share what this factor was.

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